Nihal Bitla, the face of Progeria in the county died at the age of 15. Nihal’s was the first case of Progeria detected in India. Nihal came into the news when movie ‘Paa’ was made in 2009. In this film, Amitabh Bachchan was in a role of child-like Nihal who is suffering from Progeria.
Nihal was just 15-year-old, but due to this disease, he looks like a 90-year old man. He was living in Mumbai with his family.He took his last breath on Monday at his hometown in Telangana. He was at the wedding with his family. During that period, he had brain stroke. Later he was admitted to Hospital at Karim Nagar, where he died.
Nihal Bitla was a big fan of Aamir Khan. He said he wants to meet Aamir to say ‘Thank You’ for his movie ‘Taare Zameen Par.’ Aamir Khan met him. Nihal Bitla was fond of robots and painting. He always keeps himself busy with robots and painting. his disease forced him to leave school at 4th grade but to enhance his knowledge he loves to surf the internet.
Nihal Bitla was suffering from a rare genetic disease Hutchinson-Gilford Progeria
Progeria is a very rare genetic disease. In this, the body of child ages eight times more rapidly than an average person. Most children suffering from Progeria dies at the age of 14 due to heart-related illnesses.
Its symptoms include lack of body growth, weight and hair loss, skin to be like elderly, hip dislocation, Stiffness in Joints, etc. About 300 children are suffering this disease worldwide.
During an interview, Nihal said, “I never felt sorry about my disease because I’m an individual child and this is like God’s gift.”
Nihal Bitla suffers from a rare genetic condition – Hutchinson-Gilford Progeria, which makes him look like an old man, even though he is only 14-yeals old. As well as the visible symptoms of accelerated aging, he also suffers a variety of health problems.
He is not able to run; he is not able to cycle, play sports like badminton. He has a few episodes where his joints got dislocated spontaneously, his shoulders and it was quite painful. So even while changing his clothes he fears that his shoulders can get dislocated.